Motions: Breast Cancer Support

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Published Wednesday, September 19, 2018 | Share:

I move that this House –

(a)        acknowledges the valuable support provided by Breast Care Nurses to women

            who are experiencing breast cancer;

(b)        recognises the importance of the use of lymphoedema compression garments

            in the treatment of lymphoedema; and

(c)        calls on the State Government to introduce a scheme the subsidises the cost of

            lymphoedema compression garments.

 

The Cancer Support Group in Mount Gambier offers assistance and support to people who are undergoing or have undergone, treatment for cancer.

Organisations like these, which are mainly run by volunteers, are vital to our region and are a lifesaver to someone facing a cancer diagnosis.

Cancer affects everybody and it’s a fact that the older you get, the more likely you are to be affected by several types of cancer, including breast and prostate.

One in 10 South Australian women will develop breast cancer before the age of 75.

Once treatment is complete, cancer survivors often face developing a condition called secondary lymphoedema.

Secondary lymphoedema can occur when lymph nodes are removed during surgery or damaged from radiation therapy.

It’s a chronic condition that causes swelling in parts of the body, mainly the arms or legs.

It is caused by an accumulation of lymphatic fluid, caused by a problem or blockage of the lymphatic system.

In severe cases, it’s very painful and can affect the patient’s ability to use their affected limbs, work and live a full life.

It’s important to recognise this is a lifelong condition – there is no cure.

The rates vary for different types of cancer but it is estimated around 20 per cent of people treated for breast cancer will develop secondary lymphoedema.

The condition can occur months or even years after treatment has finished.

In order for patients to live a normal and comfortable life, the condition is managed using a range of therapies, including physiotherapy, medication and lymphatic massage.

On a day-to-day basis however, most patients rely on compression garments to bring the swelling under control.

These are tightly fitting elastic garments which compress the affected area and stop the fluid from building up.

To do their job, these garments have to be professionally fitted and a patient needs two garments – one to wear and one to wash.

Some patients also require an additional garment to wear at night.

Worn every day, the life of these garments can be around 6 months each, so every year the patient has to replace them.

Depending on how many garments you need and the severity of the condition, the cost can range from $200 to more than $3,500 per year.

Over a lifetime, this can add up to thousands and thousands of dollars.

This means that many patients do not replace the garments when they need to, which can lead to health complications such as skin infections and more seriously, cellulitis.

An international survey conducted by the Lymphoedema Framework Australia found one of the key issues to improve the treatment and management of the condition was addressing the high cost of compression garments.

After paying out thousands of dollars for cancer treatment, you can imagine how this would be an additional cost burden at a time when most people would be struggling financially.

Mount Gambier’s Dulcie Hoggan was diagnosed with stage 3 breast cancer in October 2015.

A month later, she had a mastectomy and 23 of her lymph nodes were also removed.

She underwent 6 months of chemotherapy and 5 weeks of radiation therapy.

Dulcie’s attitude was positive – cope with the cancer, cope with the radiation and then cope with whatever comes later.

During the radiation therapy, her hand went numb – an early sign of lymphoedema.

She developed the condition in her right hand, arm and underarm and was told she’d have to get fitted for compression garments.

She wears two – one on her hand and a sleeve and has a separate garment for night-time.

In the last year, Dulcie has paid $1600 for her garments, which have to be specially ordered from Germany.

The garments shrink with washing and after a few months of daily wear, the stitching starts to fray.

She’s currently on her third daytime set in a year.

To fit them under her clothes, Dulcie cuts her right sleeve open and re-stitches them.

Dulcie just considers herself lucky to have survived cancer and lucky that her lymphoedema is confined to her right arm.

She is still able to work. Some people who get a serious case are not able to walk properly, let alone work.

Dulcie works as a customer liason officer at the Mount Gambier Target and had to take 13 months off work to get back on her feet.

Although Dulcie lives in Mount Gambier, she was treated at the new South West Regional Cancer Service in Victoria and her treatment was bulk-billed.

Mount Gambier sits right on the SA/VIC border.

If she lived just 20kilometres away across the Victorian border, her compression garments would be subsidised.

South Australia is the only state in Australia that does not subsidise these garments.

In Victoria, eligible patients can purchase up to six compression garments each year with 40 to 60 per cent of the garment cost subsidised.

In the ACT, patients can purchase two garments per six-month period and 100 per cent of the costs are subsidised.

Monique Bareham is the President of the Lymphoedema Support Group of SA.

She tells me they, in conjunction with the Australasian Lymphology Association, have been lobbying for a state scheme for more than 2 years.

In 2017, she met with then Minister for Health Jack Snelling, who said he would talk to SA Health to develop a business case for the subsidy scheme and also for a dedicated public lymphoedema treatment clinic for the state.

It was expected to be included in this year’s State Budget but then obviously, there was a change of Government.

I agree with Monique when she says that this is a basic issue of inequity for South Australian patients.

Monique is 47 years old and has lived with lymphoedema with eight years, so this is a battle she’s taking on, on behalf of every South Australian with lymphoedema.

Some private health insurers offer small rebates for the compression garments but limit the rebate to once every few years.

Mount Gambier’s Pam Moulden has been privately insured with Medibank for forty years and is waiting until April next year so she can claim a rebate.

Pam, now 69, has had breast cancer twice in the last four years and had a bi-lateral mastectomy.

After the treatment, she developed a severe case of lymphoedema in her right arm and describes the pain as “horrendous”.

She can’t hold anything in her affected hand and struggles to write.

She wears a full sleeve garment and has had to replace it several times, because of holes and stitching coming apart, which make the garment less efficient.

Pam has also developed fibrosis in the arm which now requires further medical garments to be worn at night.

Pam and her carer and husband Ian, are pensioners and have to plan for the cost of the garments months in advance.

Many people in need of support are being left out of pocket.

A diagnosis of lymphoedema often comes at a very difficult time for people, both financially and emotionally.

At the end of long and treatment for cancer, when someone is trying to get back on their feet, paying for these garments is just another cost they have to deal with.

An estimated 300,000 Australians will deal with lymphoedema at some stage of their life.

I ask the State Government to introduce a scheme to subsidise the cost of these garments to bring South Australia into line with the other states.

This measure will have a flow-on benefit to the state’s healthcare system.

Best practice protocols indicate early intervention and treatment of the condition in its early stages is vital to reduce the long-term physical and psychological impacts.

Compression garments are an important part of this early treatment.

If lymphoedema goes untreated, it can cause a serious health condition known as cellulitis, often requiring hospitalisation.

The impact upon the Australian health system from complications arising from lymphoedema is enormous.

It would be far more cost efficient for the State Government to subsidise compression garments and ongoing therapy rather than having to support patients during long hospital stays.

Making these garments affordable to people at the beginning of their diagnosis means more people will access them, decreasing the number of complications which require hospitalisation.

Not only that, but this will make the lives of those South Australians living with lymphoedema much more bearable.

 

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